Tourette Syndrome, according to the National Institute of Neurological Disorders and Stroke (NINDS), is “…a neurological disorder characterized by repetitive, stereotyped, involuntary movements and vocalizations called tics. The disorder is named for Dr. Georges Gilles de la Tourette, the pioneering French neurologist who in 1885 first described the condition in an 86-year-old French noblewoman.”
More information on Tourette Syndrome from the NINDS website may be found here: http://www.ninds.nih.gov/disorders/tourette/detail_tourette.htm.
Dollars 4 Tic Scholars is not a medical institution nor are we qualified to provide medical observation or medical commentary on Tourette Syndrome. We have gathered some data below that our visitors may find of interest. We are also about to embark on our own survey regarding college students with Tourette’s and will publish those findings next year when they are complete. If you have some statistics or a resource for us, we will be happy to consider adding it here or to our Links page. Please email firstname.lastname@example.org.
From the NINDS website:
- The early symptoms of TS are typically noticed first in childhood, with the average onset between the ages of 3 and 9 years.
- TS occurs in people from all ethnic groups.
- Males are affected about three to four times more often than females.
- It is estimated that 200,000 Americans have the most severe form of TS, and as many as one in 100 exhibit milder and less complex symptoms such as chronic motor or vocal tics.
- Although TS can be a chronic condition with symptoms lasting a lifetime, most people with the condition experience their worst tic symptoms in their early teens, with improvement occurring in the late teens and continuing into adulthood.
- Coprolalia is only present in a small number (10 to 15 percent) of individuals with TS.
- TS is a diagnosis that doctors make after verifying that the patient has had both motor and vocal tics for at least 1 year. There are no blood, laboratory, or imaging tests needed for diagnosis.
From the website of the Centers for Disease Control (CDC) website:
- It is not known exactly how many people have Tourette Syndrome (TS). A Centers for Disease Control and Prevention (CDC) study conducted in 2011* has found that 1 of every 360 children 6 through 17 years of age and living in the United States have been diagnosed with TS based on parent report; this represents about 138,000 children. Other studies using different methods have estimated the rate of TS at 1 per 162 children.
- *Recent 2014 reportings coordinated by the CDC and the National Tourette Syndrome Association state that it is estimated that 1 in 100 school-aged children in the United States is living with Tourette Syndrome or another Tic Disorder, which puts the prevalence at approximately 3,000,000 people nationwide.
- Among children with TS, 37% have been reported as having moderate or severe forms of the condition.
- A diagnosis of TS is twice as common among children 12 through 17 years of age as among those 6 through 11 years of age.
- Among children diagnosed with TS, 86% also have been diagnosed with at least one additional mental health, behavioral, or developmental condition, such as:
- Attention-deficit/hyperactivity disorder (ADHD),63%;
- Behavioral or conduct problems, 26%;
- Anxiety problems, 49%;
- Depression, 25%;
- Autism spectrum disorder, 35%;
- Learning disability, 47%;
- Speech or language problem, 29%
- Intellectual disability, 12%, and
- Developmental delay affecting his or her ability to learn, 28%.
- More than one-third of people with TS also have obsessive-compulsive disorder.
Florida Stats Gathered
As a microcosm of the country, and because our Foundation is only just beginning, we decided to see what we could learn about the state of Florida and Tourette Syndrome population, particularly in children aged 6 to 17 as per the CDC study above, first bullet point. We reasoned that if 1 of every 360 children ages 6 to 17 years has TS, then we could use that divisor to calculate how many children ages 6 to 17 in Florida have it. This may not be entirely accurate but gave us a small window into the population we are serving. However, with the more recent number of 1 in 100 children, we have recalculated. Here are some data points:
- Based on the projected Florida 2014 census, there will be 2,767,465 children aged 6 to 17 in Florida. If 1 in 100 have TS, the result is approximately 27,765 children in 2014 with TS in the state of Florida.
- To break it down to the local area where our Foundation is established, projected census of 2014 states that there are 239,129 17-year-olds (potential incoming college freshmen) in the state. Divided by 100 yields approximately 2,391 17-year-olds with TS in 2014 in Florida.
- Broken down into the Tri-Counties of South Florida, these statistics using the divisor of 1 in 100 show that:
- Palm Beach County has approximately 156 17-year-olds with TS;
- Broward County has approximately 224 17-year-olds with TS; and
- Miami-Dade County has approximately 327 17-year-olds with TS in 2014.
- These per county numbers comprise an estimated tri-county total of 707 17-year-olds with TS in 2014.
- Similar statistical conclusions were drawn using the 1 in 100 metric for the state of Georgia census. Total children ages 6 to 17 in Georgia in 2013 were 1,682,595, resulting in a potential TS population of 16,826 in these ages in 2013.