Tourette Syndrome, according to the National Institute of Neurological Disorders and Stroke (NINDS), is “…a neurological disorder characterized by repetitive, stereotyped, involuntary movements and vocalizations called tics. The disorder is named for Dr. Georges Gilles de la Tourette, the pioneering French neurologist who in 1885 first described the condition in an 86-year-old French noblewoman.”

More information on Tourette Syndrome from the NINDS website may be found here: http://www.ninds.nih.gov/disorders/tourette/detail_tourette.htm.

Dollars 4 Tic Scholars is not a medical institution nor are we qualified to provide medical observation or medical commentary on Tourette Syndrome. We have gathered some data below that our visitors may Stats with a hand cursorfind of interest. We are also about to embark on our own survey regarding college students with Tourette’s and will publish those findings next year when they are complete. If you have some statistics or a resource for us, we will be happy to consider adding it here or to our Links page. Please email info@dollars4ticscholars.org.

From the NINDS website:

  • The early symptoms of TS are typically noticed first in childhood, with the average onset between the ages of 3 and 9 years.
  • TS occurs in people from all ethnic groups.
  • Males are affected about three to four times more often than females.
  • It is estimated that 200,000 Americans have the most severe form of TS, and as many as one in 100 exhibit milder and less complex symptoms such as chronic motor or vocal tics.
  • Although TS can be a chronic condition with symptoms lasting a lifetime, most people with the condition experience their worst tic symptoms in their early teens, with improvement occurring in the late teens and continuing into adulthood.
  • Coprolalia is only present in a small number (10 to 15 percent) of individuals with TS.
  • TS is a diagnosis that doctors make after verifying that the patient has had both motor and vocal tics for at least 1 year.  There are no blood, laboratory, or imaging tests needed for diagnosis.

From the website of the Centers for Disease Control (CDC)  website:
http://www.cdc.gov/ncbddd/tourette/research.html

  • It is not known exactly how many people have Tourette Syndrome (TS). A Centers for Disease Control and Prevention (CDC) study conducted in 2011 found that 1 of every 360 children 6 through 17 years of age and living in the United States have been diagnosed with TS based on parent report; however,
  • 2014 reportings coordinated by the CDC and the National Tourette Syndrome Association state that it is estimated that 1 in 100 school-aged children in the United States is living with Tourette Syndrome or another Tic Disorder, which puts the prevalence at approximately 3,000,000 people nationwide.
  • Among children with TS, 37% have been reported as having moderate or severe forms of the condition.
  • A diagnosis of TS is twice as common among children 12 through 17 years of age as among those 6 through 11 years of age.
  • Among children diagnosed with TS, 86% also have been diagnosed with at least one additional mental health, behavioral, or developmental condition, such as:
    • Attention-deficit/hyperactivity disorder (ADHD),63%;Percentages of Associated conditions
    • Behavioral or conduct problems, 26%;
    • Anxiety problems, 49%;
    • Depression, 25%;
    • Autism spectrum disorder, 35%;
    • Learning disability, 47%;
    • Speech or language problem, 29%
    • Intellectual disability, 12%, and
    • Developmental delay affecting his or her ability to learn, 28%.
    • More than one-third of people with TS also have obsessive-compulsive disorder.

Florida Stats Gathered

outline map of us state of florida on blackboardAs a microcosm of the country, and because our Foundation is based in Florida, we decided to see what we could learn about the state of Florida and Tourette Syndrome population, particularly in children aged 6 to 17 as per the CDC study above, first bullet point. We reasoned that if 1 of every 100 children ages 6 to 17 years has TS, then we could use that divisor to calculate how many children ages 6 to 17 in Florida have it. This may not be entirely accurate but gave us a small window into the population we are serving. Population statistics projected for Florida from the Bureau of Economic and Business Research has been used for these stats and their breakdown was from age 5 instead of 6. Here are some data points:

  • Based on the projected Florida 2020 projections, there will be 4,414,99 children aged 5 to 17 in Florida. If 1 in 100 have TS, the result is approximately 44,150 children in 2020 with TS in the state of Florida.
  • Projected numbers for 2020 state that there are approximately 518,550 18 & 19-year-olds (of college age) in the state. Divided by 100 yields approximately 5,185 18 & 19-year-olds with TS in 2020 in Florida.
  • Broken down into the Tri-Counties of South Florida, these statistics using the divisor of 1 in 100 show that:
    • Palm Beach County will have approximately 317 18 & 19-year-olds with TS;
    • Broward County will have approximately 409 18 & 19-year-olds with TS; and
    • Miami-Dade County will have approximately 699 18 & 19-year-olds with TS in 2020.
  • These per county numbers comprise an estimated tri-county total of 1,425 18 & 19-year-olds with TS in 2020.